Date Ideas for Someday...

1. Scrabble, chess, and board games at a coffee shop
2. Walking around San Juan Capistrano's Old Barn Antique Mall with drinks from the corner Starbucks
3. Disneyland
4. An independent film at UCI's movie theater, followed by snacks and browsing in the plaza
5. An at-home round of "Would You Rather?" or some other discussion-based game
6. Hiking and bird-watching, complete with binoculars and guidebooks
7. Music, journals, art, and people-watching at Pines Park

The Day My Thyroid Was Removed, Part II

To read Part I, click here.

I woke up gasping.  It felt impossibly difficult to swallow air into my lungs.  I was disoriented.  I started crying.  I tried to rub my eyes, but a pulse monitor on my finger and various tubes got in the way.  I started asking for water as I wept.  "Water.  Can I have some water?"

I heard a male voice tell me to stop rubbing my eyes.  It was my nurse.  He said he was going to have to call an ophthalmologist if I didn't leave my eyes alone.  I began asking for my parents.  "Where are my parents?"  My parents were called to my bed.  The nurse offered me ice.

My bed was in a rectangular room with many other beds.  All of the beds were situated around the perimeter of the space, and a work area for nurses was like an island in the center of the room.  My bed was at the back left.

When my parents came in, they called my brother at home.  He sent my mom a picture of Tobin on her iPad.  When she held up the picture, I started crying again.  Then my mom handed me the phone so I could talk to Tobin.  Through tears, I said, "Hi, honey!  It's me!"  I started babbling to my parents about how I wanted Tobin "right here," and motioned towards a spot on my bed.  I was in and out of sleep, as was my dad (possibly my mom, too, but I didn't notice).  I had a pack of ice on my neck.  My mom took a picture of me to post on Facebook.

After the initial offer to chew on ice, I was eventually given water, and then apple juice.  The nurse told me that this was to make sure the anesthesia wasn't causing any nausea.  At some point I was escorted to the restroom.  I had to urinate into a pan so the amount could be measured.  I walked back and forth from my bed in a gown that may or may not have been open on every side (cancer and major surgery certainly take away any sense of modesty or embarrassment).

Eventually I was transferred from one post-op room to another.  I think they transported me in a wheelchair.  I was then assigned a new nurse in this new room.  This room had more privacy; instead of curtains on three sides, there was only one curtain.  The anesthesia slowly wore off.  My new nurse ordered me the "broth plate" (broth, Jell-o, applesauce, orange juice--I think) from the hospital cafeteria.  I told her about my dietary restrictions, so she went out of her way to ensure that my plate was gluten-, dairy-, and soy-free.

My mom let me fiddle with her iPad.  I went to the bathroom again without assistance.  I read my library book.  My parents eventually went back to their hotel to rest and get some food.  I continued to read.  A male nurse came in and asked what my book was about (hoarding), and we had a brief conversation.  My surgeon came to visit me.  I was jubilant to see him (he's become some kind of major hero in my mind).  He told me that since I seemed to be recovering so well, I could eat solid food.

The nurse ordered my dinner plate, again noting to the chef my particular dietary restrictions.  I ended up getting roasted chicken, green beans, and fingerling potatoes (it was just about as delicious-tasting to me as a meal could possibly be).  My parents came back at some point either right before or during my meal.

I wore some kind of compression devices on my legs to prevent blood clots.  They began to make my legs sore, so the nurse turned them off.  Around 9PM, it was finally time for me to be transferred to the overnight room.  They wheeled me through what felt like multiple buildings, until we reached my home for the night.  I was given my own room with a sliding glass door and restroom.  I was given a controller with buttons for the bed, light, and nurse.

After the switch, my parents left for the evening.  I had a chance to wash up for the first time since before my surgery that morning.  I discovered that I had yellow streaks running across my neck and cheek from the pre-operation cleaning (I thought this was some kind of iodine, but I don't actually know what they use to clean the skin).  Every time I got up to go to the bathroom, I had to page the nurse so she could come in and unhook all the monitors connected to my body.  That also meant re-attaching them every time as well!

I settled back into my bed.  I stayed up for a while and read my library book, and I think the nurse may have brought more Jell-o and apple juice at various times.  I was also given painkillers regularly.  With every nurse switch, I was asked about my allergies to medications.  Every. Single. Time.

I was given thyroid hormone for the first time that night, even though I'm normally supposed to take it in the morning.  I mentioned this to my nurse, but she told me it was part of her orders.  She and I also had a conversation about her friend who was recently diagnosed with cancer.  The nurse told me I was an encouragement and inspiration--even though I really don't think I qualify for either of those titles!

I finally faded off to sleep, hearing the sounds of the nurses talking quietly at their long desk outside my room.  I woke up around 7AM.  One of the nurses came in to tell me that my doctor would be visiting soon.  Shortly afterward, the team of residents who assisted with my surgery came to visit me.  There were at least six of them.  Only one spoke directly to me.  They all had enormous smiles and looked so eager and excited.  The resident asked me some questions, and then asked if I had any.  I asked about when to take my next dose of thyroid hormone, when I could go back to the gym, and possibly when I could put cream on my scar (I can't remember if I had any other questions).

My surgeon eventually came to visit me as well.  I re-asked the same questions I posed to the resident.  Eventually the hospital began the discharge process.  I can't remember if my mom and I talked on the phone or if we had planned the day before what time she and my dad would come to the hospital.  While I was waiting for them to arrive, I had a chance to wash my face and brush my teeth again, and I changed into the clothes I had worn on the way to the hospital.  I somehow managed to get my hair into a ponytail.

Unfortunately, the nurses had lost my paperwork, so my parents and I had to wait around in my room while the staff scrambled to get me out of there.  I started to feel pain, so the nurse gave me more painkillers.  They had to scan my wristband every time they gave me any kind of medicine.

I was finally officially released.  My mom went to the pharmacy while my dad went to bring the car to the front of the hospital.  The nurse wheeled me out of the building, and someone helped with getting my bags into my dad's car.  My mom called to say the prescription wasn't ready yet, so my dad and I waited.  Finally, the medicine was ready, so my dad slowly drove the car over to the entrance that led to the pharmacy, and we were off.

I don't remember much of the drive home, or even what I did once I was home.  I do remember needing my dad to help me lay my head down (he had to hold my head up while I laid the rest of my body down because I had no use of my neck muscles).  I also remember not being able to tilt my head up or down while sitting or standing.  I had to put a pillow behind my back when I sat at the kitchen table; otherwise, I was in too much pain from having to overuse my head and neck while eating.

The rest of the day is not really in my memory.  I don't know if this is from the anesthesia or painkillers, or simply because I was sleeping and the day was uneventful.  Technically, this was the day after my thyroid was removed, so I guess it doesn't hold as much gravity for me.

I am grateful to all of the staff who accommodated my needs and offered me exceptional care.  I felt like I was in capable hands during my entire time at the hospital, and I am glad that this day seems like such a distant memory.  I am proud to be a cancer survivor, and the roles of the various medical personnel who made that reality possible will never be forgotten by me.

I am a survivor.

That moment when you remember how your professors radically changed your life...

That moment when you're reminded of the vision you held for your future...

That moment when you realize you're a survivor.

Today is the 16-week anniversary of my total thyroidectomy, and thus my 112th day of being cancer-free.  These anniversaries are largely non-monumentous.  Every few weeks, I take a photo of my scar and post it on Facebook with a caption about which anniversary I've reached.  The photos always garner "likes" and comments, and they're a small and simple way for me to celebrate.  I have also been turning these photos into "covers" for my Facebook profile, after I add to them the statement "I am a survivor."

The fact that I'm a survivor has been a conscious reality since the day I was diagnosed with cancer.  But I have given the title (survivor) little meaningful thought in the past few weeks.  I don't know that I really considered what the word meant beyond the fact that it made a statement about my having battled cancer.  However, something in me shifted tonight as I read those words.

I've been struggling a lot lately with trying to figure out the future.  I realize that working in retail is unsatisfying and impractical for the long-haul.  I want to contribute something to the greater good of mankind--research, teaching, love.  I want to make a difference in the world.  As an INFJ, my heartstrings are always pulled in so many directions.  I read an article recently that said that career options for INFJs are always simultaneously exciting and heartbreaking.  As idealists, the world of possibility is thrilling and produces in us all sorts of fantasies about the future.  However, all of those possibilities are also crippling, because we come to realize that to pursue one pathway is to sacrifice another.  We can't do everything.  And so at once none of the options are appealing any longer because we can't do all of them in one self-designed career (wouldn't that be nice?).  It's frustrating.

So, I've been dealing with all of that INFJ confusion--the appeal and drawbacks of every job out there.  Add on top of this the fact that INFJs often feel misunderstood (and often are misunderstood) when sharing their intuitive insights, so people write off this deep analysis of future options as crazed neuroticism.  The INFJ then packs up all this thought and places it back into the very personal introverted intuitive luggage, and once again starts mulling over the more "conventional" options, because those aren't considered "crazy."

And then I get to throw an autoimmune disease, endocrine disease, MTHFR gene mutation, and histamine intolerance into the mix of my endless thought processes, which does result in a certain amount of crazy as I try to create a game-plan for my future.

The past few weeks I've been revisiting the idea of pursuing a Ph.D., as I think it may be one of the only career paths that affords me the level of freedom and time for contemplation that I'm seeking.  The struggle I have been facing with this idea is what kind of research agenda I would propose in my personal statement.  I want to write something honest and compelling, but to be honest would be to say that I really don't know what I want to do doctoral level research on.  Earlier tonight I read through old personal statements and academic essays, and then found a letter I wrote to my professors when I graduated from Cal Poly.  The letter mostly talks about how their mentorship and guidance is what made me want to become a professor in the first place (over eight years ago), and how I wanted to inspire my future students in the same ways my teachers inspired me.

When I finished reading the letter and closed it on my desktop, the first thing I saw was the cover photo I had posted on my Facebook profile earlier today.  It felt like the "I am a survivor" statement was boring a hole into my heart.  For the first time, those words made me want to cry.  They no longer just meant that I battled cancer, but that who I am in my very essence is a culmination of every event that has ever happened to me, both in the past and moving into the future.  I could easily say "I have hope" or "I have a future," and they would mean the same thing as telling people that I'm a survivor.

Writing this now brings to mind the verse that was a favorite for years and years--the one that all my friends knew I loved, and that caused them to give me knowing glances whenever we read or heard it.  It was my signature verse, for reasons that I won't outline in this post.  But, suffice it to say, the words still hold profound meaning in my heart, and are something I think I need a reminder of today.

Jeremiah 29:11

"'For I know the plans I have for you,' declares the Lord, 'plans to prosper you and not to harm you, plans to give you hope and a future'" (New International Version).

or

"I know the plans I have in mind for you, declares the Lord; they are plans for peace, not disaster, to give you a future filled with hope" (Common English Bible).

I take the GRE in one week.  My prayer is that during the test, these words will be my companion:

I am a survivor.

I have hope.

I have a future.

For You, My Fellow Introverted Idealists, My Fellow Autoimmune Disease-Sufferers

What if I told a new narrative for my life?

Last year in one of my graduate seminars, we read a book by Geraldine Pratt in which she discusses transit lane versus trapped narratives.  Transit lane narratives are the dominant discourses of the most visible populations.  The ones told and retold by the media, in our schools, by way of a constructed cultural consciousness.  The trapped narratives are those of oppressed peoples, that get bypassed for the more "important" narratives--that stay hidden away because they contest our neatly-constructed cultural consciousness.  They would upset the status quo.

And, when I shift the concept of these narratives from macro to micro, I realize that I have designed the same system in my own life--for my personal narrative.  I have an idea of who I am or who I should be, informed by choices I've made over the years, words that people have spoken to me, beliefs I have been trained to believe about myself or have wrongly assumed about myself.  I have been fixated on one narrative that is defined by the woulds and shoulds and supposed tos.  A narrative that is neatly-constructed and deeply embedded in my self-consciousness.

Perhaps the real narrative for my life is trapped.  Or, a narrative for what my like could be is trapped.  All those beliefs I have believed and tales I have been told and assumptions I have assumed--but how many of them are part of His narrative, the meta narrative, and how many of them have become the story of my life simply because it is the same narrative repeated over and over...?

Can I frame a new narrative for myself?

Is there another narrative He wants me to tell?

My narrative for the past five years has been about disease and exhaustion and doctors' visits and medical bills.  It has been isolation and rumination and depression.  It has been giving up on a lot of maybes and possibilities.  The admitting that compromise and sacrifice are necessary evils of living with chronic illnesses.

I cannot rewrite my story.  I am who I am who I am.  I will always have my past experiences and my chronic illnesses and my passions and likes.  But my narrative doesn't need to be dictated by sickness or past experiences.  Illness is my transit lane narrative, but that doesn't have to be my narrative at all.

I don't know how to ride the line between living with a chronic illness and not letting it control me.  It affects a huge part of how I live my life.  But I think that I've for so long wallowed (I'm not sure that's the appropriate word) in the knowledge of my diseases that my every experience and very reality has been shaped by that wallowing.  I don't want to live life that way.

Additionally, before illness more or less came to control my life, I had certain ideas and ideals about what I wanted to do with myself--what I wanted to devote my time and talents to.  Sometimes I wonder if being diagnosed with chronic illnesses wasn't a sort of get out of jail free card--an opportunity to start out on a pathway I had never given myself the room to consider, at least not since childhood.

I'm still figuring out who I am.  What I like and what I'm good at and where my talents and passions will collide.  I'm still learning what it means to be an introvert (more specifically, an INFJ) and a Highly Sensitive Person.  What it means to be a cancer survivor and live each day battling autoimmune disease.  How I can live a healthy and happy life, finding balance between recognizing my limitations and not giving up on dreams.

I want to make a difference in the world, but that dream seems like such an amorphous and ambiguous thing.  I know I want to create, and organize, and contemplate, and help, and connect, and be independent, and embrace my values.  I don't want my work to just be work.  I want it to be my mission.  But I also want to take care of myself while on that mission.  No more grandiose dreams of high-stress overseas work with people.  I just want peace, and beauty, and authenticity.

I don't want to feel constrained by my past experiences or limited by my degrees or jobs or what people have told me about myself or even what I have wrongly or rightly believed about myself.  Can't there be a new narrative?  An emerging trapped narrative?  One that is true and good, but simply buried by more visible story lines?  Or, by ones that are easier to believe or that fit together more neatly as an unfolding narrative "should"?

What if I was brave enough to tell a new story?  To unearth a trapped narrative?  What if my life became something that no one, not even I, ever predicted or envisioned for myself?

I don't know what it would mean to live a trapped rather than a transit lane narrative.  Somehow it seems harder, scarier.  But also richer.  Better.  More beautiful.

And that is what I want.  Richer, better, more beautiful.

God, help me tell my story.

My Non-Linear Trajectory

Sometimes it's difficult for me to accept that my interests evolve.  In my mind, I would like my life to reflect some kind of linear trajectory--logical and focused.  I want the central unique purpose for which I was created to be obvious in all of my jobs and volunteer efforts, etc.

However, as I get older I realize that nothing in my life has ever (ever) gone according to plan.  I wanted to be a missionary.  That desire became more focused, and I decided that I wanted to work overseas with children.  I wanted to attend a Christian college, where I thought that I would receive the best training for my intended career.  I ended up at a (very good) state school.  I started out majoring in Liberal Studies, and within only a few weeks of my first quarter of college discovered the program was not a good fit.  I waffled in indecision over my major for nearly two years.  My university approved a new bachelor's degree in Comparative Ethnic Studies.  The program required two Ethnic Studies courses to switch majors.  I registered for the prerequisite courses and applied to switch majors, not really knowing what Ethnic Studies was, but certain it would better prepare me for work overseas.  I went overseas and worked as a missionary for a year.  I hated it.  I returned home to the U.S. and discovered that I actually really loved Ethnic Studies.  I wanted to get my Ph.D.  I was accepted into a doctoral program.  I went to visit the school where the program was and I freaked out.  Despite being offered a full fellowship, I decided not to go.  I considered divinity school.  I thought it would prepare me for religion-focused research in a doctoral program down the road.  I tried two different divinity programs.  I hated them both and dropped out of them both, one year after the other.  I ended up working in special education at the same time I made the decision to get a master's degree in Women's Studies.  I started the program, realized it wasn't a good fit, and then transferred into an interdisciplinary program that allowed me to take more education coursework.  I graduated and got a job in special education and hated it.  Now I'm in retail.

There has always been an innate drive to help people and make a difference in the world, but I don't know that I've ever pursued the best and most appropriate means of doing those things.  I've chosen very extroverted and emotionally-draining roles, and as an INFJ and Highly Sensitive Person, I burn out quickly.  I don't know that I've ever found a job that truly embraces all of my gifts without totally wiping me out on an emotional, spiritual, and sometimes physical level.

I loved the Comparative Ethnic Studies program at Cal Poly, not just because the subject matter fascinated me, but because during that time my lifestyle was perfectly suited for my personality type.  I spent countless hours pondering issues and ideas that were meaningful and aroused my passions for those treated unjustly.  I was in class during the mornings, but had most of the day to work on projects or papers and make decisions about how I would manage my time.  Focusing on the experiences of oppressed peoples made me feel like I was somehow making a difference in the world, if only because I was becoming a more aware world citizen--and thus could potentially educate others.  I wrote and read and had engaging intellectual discussions.  I worked for my professors doing editing and creating handouts and fliers, which tapped into my artistic sensibilities and need to organize and attend to details.  I conducted oral history interviews for a number of ongoing projects, which allowed me to connect with people in deep and productive ways that were based on pre-determined questions and thus didn't exhaust me.  In terms of my Clifton Strengths, Intellection, Responsibility, Relator, Input, Achiever, I was actively making use of all of my greatest assets.

The desire to go on for a Ph.D. was largely to mimic my undergraduate lifestyle, and not necessarily for the doctoral title or program itself.  With a high strength of intellection, I am drawn to any role in which I have a significant amount of time dedicated to critical thinking and making connections between ideas.  This is both a blessing and a curse.  I love to contemplate and learn and study and focus on big ideas, but my interests are at times so diverse and disparate that it would be seemingly impossible to focus them into one doctoral program.  Can't I just go to school forever?

The last few years have resulted in a significant amount of self-discovery and self-analysis.  After I lived in China and discovered that I am an INFJ, my entire self-perception and worldview shifted.  So much about myself finally made sense.  When I discovered last year that I am also a Highly Sensitive Person, it was like the final piece of the puzzle fell into place.  I'm not crazy.  I don't think I am unique as an HSP who struggles with deciding on a career path.  I wonder how many HSPs are also INFJs, and how many of them also have a strength of intellection?  How many of them struggle with autoimmune disease or other physical manifestations of living in an over-stimulating world?

I've been thinking a lot lately about continuing on in my education.  I really do love being in school.  However, I feel paralyzed when it comes to choosing a program.  There are so many programs, and it feels like choosing one would be at the expense of a whole realm of interests.  It's also hard for me to choose a program without some kind of practical application in my mind's eye, because I want a job to be at the end of it, but I don't really know what job I want to do.  Does the job I want even exist yet?  Do I have to create my own job?  I've been reading a lot of online articles lately that basically tell me that the best option for a Highly Sensitive Person is self-employment.  That seems easier said than done.  I'd love to work for myself, but what kind of business would I be creating in the first place?  Can I get paid to think and organize?  Wouldn't that be nice...?

I've thought about continuing my education in Disability Studies, pursuing psychology, becoming a naturopathic physician or nutritionist.  I've considered doctoral programs in traditional fields like Sociology or Education, or nontraditional fields like Sex and Gender Studies.  Unfortunately, Ph.D. programs require you to submit a focused research proposal with your application, and when it comes down to it, I don't really know what I want to study.  Do I really want to conduct a major research project?  Can't I just read and think without having to worry about a dissertation?  Can't I just skip over all the politics of academia?

I know there are other people out there in the world that think and feel like I do.  I wish I knew my tribe.  I wish we could all band together and brainstorm and discover what each of us is meant to do.  I don't always mind doing the work of self-discovery, but sometimes I feel stuck and want to move forward--but I just don't know how.  I see so many of my peers that are happy and progressing in the normal socially acceptable ways.  I don't necessarily compare myself to them, but it does leave me to wonder why I can't just make decisions and when I will actually take action steps to change my life.  Will I ever really know what trajectory I'm on?  If my past is indicative of the future, my path will never be linear.  I think I'm in denial about this.

What do I want to do?  What do I really want to do?  I know I want to work in a quiet, scenic environment and have lots of time for thinking and reflection.  I want to be able to do something creative.  I want to be able to use my hands to organize--to sort and categorize.  I don't want a boss hovering over me.  I want my work to contribute to the greater good of humankind.  My MAPP Career Test results list the following as my "top motivations":

• I have a strong preference to work under the supervision of someone who is knowledgeable. I seek clear direction. I like to "learn the ropes" and develop expertise.
• I am motivated to gather, record, departmentalize, store and retrieve information.
• I am talented at spatial measurement and arrangement, artistic ability for factual image reproduction, attention to detail, awareness of machines and their function, and tolerance of routine.
• I have the ability to remember exactly what was written or said.
• I perform well in roles where I feel I can share information that makes a positive difference to others.
• I am motivated to carry out instructions for routine tasks in a familiar environment.

I wish that someone could simply read that list and say, "Aha!  I know exactly what you should do."  Somehow, I think this journey of self-discovery is ongoing.  As much as it pains me, I think that I will probably continue to try things and hate them as I whittle my way down to my true purpose.  Or, perhaps my purpose is simply to be a sojourner trying all these things, never really knowing where I am headed, but trusting that God is in control nonetheless.  Perhaps I am meant to experience as much life as possible so that I can relate better to and serve all people, and the true linearity of my trajectory is actually found in its inconsistency.  If that's the case, Lord, give me a willing heart...

My Future: A Poem

I want to live in a small cottage by the sea

And have a flock of schnauzers

And drink tea

And write

And have a vegetable garden

A Smart Car

And a big desk overlooking the water

And an art studio

A husband who will with me: go to Starbucks and play board games,

peruse local antique markets,

read on the front porch

I Am Valuable, My Life is Worth Living

I don't love myself.

It's a realization I've made during the past weeks, or perhaps months or even years.  I don't love myself or find value in myself, and so I haven't been taking care of myself.

I'm not usually the biggest fan of Joyce Meyer, but over the weekend I came upon some words she wrote that spoke to my soul.  We can't love ourselves until we are healed emotionally, and we can't heal emotionally until we accept God's profound and unconditional love.

The depression demon usually visits me a handful of times throughout the month, generally in relation to a combination between where I am in my hormonal cycle and how I've been eating.  Tonight I was trying on some outfits, and all I could think about is how fat I am.  I looked in the mirror at how big (objectively speaking) I've gotten in so many places, and it made me feel totally unattractive and undesirable.  Coupled with those feelings is my already low self-esteem resulting from knowledge of my diseases, and the belief that I'm abnormal and tainted and not someone who anyone would want to marry; I cry in desperation, feeling like an alien creature stuck in a life she doesn't want, but incapable of having anything more or different.

In reality, I'm only 20 pounds heavier than my "normal," a result of hormone imbalances, cancer, and a puttered-out thyroid.  However, I think much of my self-worth hinged on my thinness, and now that it's gone (objectively speaking), I don't feel good about myself.  Before that, I found value in academic performance and achievement.  Before that, the perceived strength and quality of my faith in God.  I'm not in school and I've moved away from my legalistic Christianity and into something that feels less certain and secure (the loss of legalism is a good thing, the loss of security is not such a good thing).  Without my previous appearance, or academic accolades, or the recognition of a mature faith journey, I no longer have anywhere to find value.  Except the value that God has inherently created me with.

So much of my life has been about performing and doing and achieving that I missed out on many years of just be-ing.  When I was a missionary in China, for the first time in my life I was surrounded by a team of people who spent time doing things they enjoyed, simply for pleasure.  That concept was so foreign to me.  I didn't even know what I really liked doing.  I remember starting to spend afternoons outside with my camera, and then I bought some paint supplies at a bookstore and painted some pictures for the first time ever, just because I could.  I bought fiction books.  I downloaded music and learned about different singers and bands.  I began to exercise and cook healthy foods.  I became less focused on the appearance of my life to other people, and made choices that brought joy to my heart.

I'm not sure what's happened in the past four years, except I think that somehow with my medical diagnoses I began to give up on my life a little bit.  I remember when I was first told I had Hashimoto's Thyroiditis and probably PCOS, my immediate thought was, "Well, I guess I'm not getting married."  Somehow a disease made me abnormal, and that abnormality made me unlovable, and to be unlovable meant I had no value.  I think that I've been caught in the web of this pattern of thinking since that day in the beginning of 2010.  I am abnormal, so I have no value.

It's difficult to come to terms with the physical ailments you've been born with--to know that God created you with these proverbial thorns in your flesh.  I know that we all have our weaknesses and idiosyncrasies and problems, but somehow because I now see that I am not and can never be perfect, I have lost all sense of self-worth.  Perfectionism is such a painful and exhausting addiction.

But then I think about how much God has created me to be able to offer to the world.  My emotional and spiritual and physical struggles are but fodder for the possibility of ministering to others--of feeding God's sheep.  My suffering makes me more real and authentic and genuine (I hope), so that I can be a source of comfort and respite and truth to the people around me.  And He has given me gifts, as a human be-ing, that are unique only to me.  And not only gifts, but a calling to which no other person has been called.

I think about so many people He has placed in my life, people who love and value and appreciate me for who I am and nothing I've done.  People who have loved me through the ups and downs of my autoimmune disease, the good days when I've been kind and grateful and warm, and the bad days when I've been depressed and cranky and cold.  People who have loved me through my cancer, showering on me their support by way of an outpouring of financials gifts and notes of encouragement.  People who have continued to seek out relationships with me, even when that seeking out is very much one-sided.  All of that love and support and seeking speaks volumes about the love of God, and if the people in my life have valued me in this way, how much more does my Abba Father lavish His value and love and pride on this little creature He has created--me?

Earlier this year, I began to see a counselor to help me with PTSD from a near-fatal car accident I was in two years ago.  During our first session, she gave me a list of positive self-affirmations and negative self-talk.  We discussed some of the phrases from the list that I want to come to believe to be true.  I no longer see the counselor, but I have since begun writing these positive phrases in my journal.  I think there is a lot of power in claiming these affirmations in my own writing in my own personal journal.  I also began to rewrite some of the affirmations as truths about God (i.e., God is in control; God can be trusted).

I haven't been very consistent about going to the gym since my cancer surgery, but tonight, amidst a mini emotional meltdown, I knew I just needed to get out of the house and focus my mind on something other than my own unhappiness.  As my endorphins kicked in and I actually began to feel the cloud of depression lifting, I began to say to myself, over and over:

My life is worth living.

And then I added to that:

I am valuable.

And so I pumped those elliptical pedals and chanted to myself, "I am valuable.  My life is worth living.  I am valuable.  My life is worth living."

I have begun to make a list of things I want to commit to doing every day and/or every week in order to nourish my body and soul.  If I feel trapped in my life and want things to go differently, I am the one that needs to take steps to change what is changeable.  I am going to start taking care of myself because I am valuable, and my life is worth living.

He made me valuable.  He gave me a life worth living.

God, grant me the serenity to accept the things I cannot change,

The courage to change the things I can,

And the wisdom to know the difference.

Sanctified Artistically and Creatively

At some point, I will conclude my account of the day my thyroid was removed. I've felt guilty for not spending any time writing as of late--actually, I've felt guilty for not wanting to want to write. To be honest, going back to work about a week ago was completely exhausting for me. Though my mood is mostly good and I can keep up with my co-workers and complete typical day-to-day tasks, there's not much of an energy surplus when I get home to devote to creative endeavors or even exercising. The gym is something I typically do on a daily basis, but right now my body wants rest, so I'm giving it rest. I think my brain also wants rest, so I'm giving it the same treatment as my other parts.

I've been mulling over some thoughts during the past few weeks, and especially the past 36ish hours. Being surrounded by artists and fine art supplies every day certainly forces me to confront the reality that I'm not devoting any time to my own art. My camera sits in its bag, unused. My paints sit in my ArtBin, unopened. My collage cutouts sit in my desk drawer, unglued. I know that I need to extend some grace to myself for not accomplishing any projects, given that the past couple of months have been so focused on my cancer. At the same time, I can't blame my cancer for the months before my diagnosis in which I still wasn't cultivating my seeds of creativity. I know that I've been battling ill-health for some time now, but I also know that I have a good many excuses, most of them stemming from my perfectionism, that keep me from acting on this yearning to create.

As a child, my desire was to become an artist. That was my career plan for probably the first eleven years of my life. I had student artwork displayed in my community's art gallery. I read all I could about Vincent Van Gogh (and even dressed up like him for a research report in fifth grade, bandage-wrapped ear and all). I came home from school and immediately turned on the television to tune into "It's Curtoon Time!" My mom bought me art and craft kits for birthdays and Christmases. I spent my weekends designing outfits with my Barbie fashion design kit.

I don't exactly remember when, but sometime after fifth grade I stopped wanting to be an artist. There was a brief period of time where I wanted to be a veterinarian (because of my new-found interest in reptiles, via my lizard, Sam). I wanted to be an actress (because of praise after performances in classroom skits and winning a play-writing contest at school). I wanted to be a special education teacher (because I was a "big buddy" to a kindergartener with special needs). As I got older, my desire was less and less to create, and more and more to help others, particularly marginalized people groups. I became more serious about my faith in sixth grade, and shortly after that I decided that I wanted to be a missionary. I think that this desire resulted in part from my drive to help others, but also from the belief that it was what would bring me into greatest intimacy with God. What I can now say in hindsight, after working in full-time Christian ministry for a year, is that I am neither called nor gifted to do overseas missions.

For the past few years, I've bounced around in terms of career ideas and pursuits. My sister told me that I change my mind a lot, but my coworker suggested that I just haven't found my place yet. Amidst my missions work and brief divinity school stints and plans to get a Ph.D. and jobs working in special education, deep down I have wanted to be an artist. I don't know exactly what that means, but I think that God has guided me to the place where I can discover the meaning behind that desire.

Several years ago, I sought prayer from a spiritual leader at my church. During one of our meetings together, without having any prior knowledge of my childhood desire to become an artist, the leader told me that I was created to be an artist. She told me that I had been sanctified (set apart) artistically and creatively, and while we were praying she said that God gave her visions of beautiful pieces of art pouring out of me. I don't remember the exact descriptions of her visions, but I do remember feeling equal parts surprised and skeptical. In the days following our meeting, I went to the gym and chose an elliptical machine, and then realized some type of artist magazine was left on it. This was somewhat strange because I had been going to that gym off and on for at least six years at that point, and had only ever seen celebrity gossip magazines. But what made it even more strange was that there was a post-it note inside the magazine with the words "your article," and it was flagging a piece of writing that discussed becoming an artist(!).

Last night, I had the opportunity to attend a lecture and demonstration at work that featured a local oil painter. Interestingly, several years ago when I was actively involved in college ministry, I somehow obtained a bookmark with a picture of the painting "The Last Supper with Twelve Tribes." I never paid much attention to the artist's name, but I remember always having a fondness for the work. Well, imagine my surprise when I started my job a few months ago and learned that the man who made that painting is a regular customer at our store. He is the one who spoke at the work event last night, and his words reminded me that I have a gift and talent that need to be nurtured. Because of my perfectionism, I'm prone to give up on creative endeavors because right now I'm not at the level I want to be at. However, hearing about the effort this man invested in practicing and learning and becoming a good artist made me see that I need to actually set aside time and space to practice art--without placing expectations on myself. With all the jobs I've tried and career paths I've pursued, I keep coming back to this small voice of desire deep down in my heart, telling me that I need to be an artist, and it's time that I listen.

As I said before, I don't know what kind of art I want to create or even what tools or mediums I will use. All I know is that somehow as this journey slowly unfolds, it seems more and more connected and logical. Despite a resting brain and potentially muddled writing, I am posting this as: 1.) accountability to pursue artistic endeavors; 2.) a reminder that last night God stirred something in my heart.

Side note: I would like to draw attention to my insightfulness as a first grader.  Jon Holland, a psychologist, came up with the "Holland Occupational Themes"--six primary career strengths that are assigned based on personality.  My top two Holland Codes are artistic and conventional, essentially creating and organizing.  On the Holland Codes hexagon, my two strengths are directly opposite one another, meaning that the combination of those two strengths is possible, but rare.  At the age of seven, I was self-aware enough to know about my desires to create and organize, thus my conclusion that I would work in retail part-time (a conventional job), and as an artist the rest of the time (an artistic job).

The Day My Thyroid Was Removed, Part I

I had intended to write this post right when I got home from the hospital, but it didn't seem essential during those first few hours of recovery.  Plus, some recollection of that day is nothing more than vague, morphine-induced memory.

I woke up at 3:30AM.  I had only gotten about three hours of sleep, but I figured I'd be anesthetized in not too many hours, so a lack of sleep didn't bother me.  I was finishing packing, cleaning my room, getting Tobin's food and medicine situated so my brother could take care of him.  My parents and I left my house at 4:30AM.  My dad missed the turn for the freeway.  I was mad.  The madness mostly came from equal parts exhaustion and stress.  I'm actually glad my surgery was scheduled for so early, because I was so tired and it was so dark outside that I didn't have the clarity of mind at that point to really absorb what was going on.

We called my sister, per her request, when we were about halfway to the hospital.  She made weird cackling noises.  She made me laugh.  It was hard to hear her while we were driving, so I said goodbye.  We arrived at the hospital shortly after 5:30AM.  My dad parked the car in the paid hospital lot.  It was a little brighter outside, but the sun hadn't risen yet.  I grabbed my bag and hustled to the information desk.  There were two security guards there.  Apparently they were on duty until the hospital officially opened to the public.  They directed me down the atrium to the second door on the left.  My parents caught up with me and we made our way to the registration room.

I signed in on a clipboard.  We sat in leather waiting room chairs.  The registration clerk came to get me.  My mom and I followed her to her desk.  She typed a lot of information on her computer, took my insurance card.  Gave me a thick folder with a picture of a coastal cliff kissed by the sea.  She put an identification bracelet on my left wrist.  She walked me and my parents to the elevators and told us to go to the second floor and directly into the office on our right.

We arrived at the office.  Another couple was sitting in the chairs there, waiting.  My dad and I went to sit in some chairs across from the elevators.  My mom waited outside the office.  Another woman and her mother appeared on the elevators and made their way to the office.  My mom told them we were all waiting.  The woman asked what we were there for, and my mom told her I had cancer.  The lady hugged my mom.

A nurse arrived at 6AM, wearing scrubs and a backpack.  We saw a lot of that that morning.  He checked in the couple and escorted them through a door on the back side of the office.  My mom told me to come sit in the chairs inside the office.  The nurse took my name, then escorted my parents and me into a pre-operation room.  He told my dad he wasn't allowed to be in there yet.  My dad went to the lounge to wait.  The nurse laid a folded gown, some socks, and a plastic bag on the bed.  He told me to undress completely, and leave the gown open in the back and tied at the neck.  He also gave me a cup to pee in.  I had volunteered to be part of a research study, so this part was my doing.  The nurse told me to fill the cup before I changed.  I obliged.  Carried the cup back from the restroom to my little corner of the pre-op room.  I didn't know what to do with the cup.  I set it on a shelf.  I changed.  I laid down on the bed.  The nurses came and put a blanket on me.  They attached a tube to a slot in the blanket, and warm air blew in.  I decided then that it would probably be the best part of the day.

My dad was invited back in at some point.  I can't remember when.  Several nurses came in and out.  One of them took my pee cup.  Eventually a nurse came to put in my IV.  He was very good.  It didn't hurt at all (and I didn't even have a bruise afterwards).  He was having me open and close my fist, and then he tap-tap-tapped the veins on my hand.  He found one he liked.  Part of my agreement to participate in the research study involved giving my blood.  He took it from my hand through the IV needle.  It was weird.

Two anesthesiologists came in at different times.  The first one, a man, asked me a lot of questions--the same questions almost every nurse came in and asked me, mostly about allergies to medications.  He made me feel at ease.  He was wearing some kind of athletic zip-up.  The second one, a woman, came in wearing some kind of colorful surgical cap.  I want to say it had cats, but that's me brain filling in false information.  She asked me the same questions as the man, then told me it was time.  My parents stood up to hug and kiss me goodbye.  I started crying.  She wheeled me away and told me she makes people cry.  I told her it was my parents.  Then she said something about putting me to sleep, and put anesthetic in the IV.  We were wheeling through the hallways, out the pre-op room into one hallway, turned right into another hallway, turned right into the operation room.  I remember the ceiling.  It was white.  I remember the room was big, and I remember thinking it looked nothing like what I see in Grey's Anatomy.  I heard voices.  I heard my doctor's voice.  I felt relieved.  And then I remember nothing.

To Be Continued

Entrusting My Care to His Hands

No one tells you that when you're diagnosed with cancer, so much of the emotional turmoil and overwhelming nature of the situation won't have to do with the diagnosis at all, but with all the planning involved in having cancer.

My brother commented that it seems unfair for people with cancer to have to plan and pay when they didn't choose illness and all of its life interruptions.

There's the taking time off of work.  Getting shifts covered by co-workers.  Making calls to your insurance company (I thought I hated them before--true medical crisis takes hatred to a whole new level).  Coordinating finances with medical providers.  Tracking down a clear retainer to use in lieu of your nose ring so the piercing doesn't close while in surgery (wait, that one's just me?).

I stare at my computer, switching back and forth between my online banking homepage and my insurance company's summary of benefits.  I try to figure out how this is all going to work.  Why doesn't anyone tell you how expensive and annoying cancer will be?  It's so distracting that you forget why you're making the calls and perusing the websites and adjusting work schedules in the first place.

I contacted my boss earlier to let her know that I will be having surgery on Monday, and that I will need to take next week off if it's not a problem.  Her response made me cry, because it reminded me that this is about my cancer.  She told me she's proud of me and that I'm going to kick this thing's butt.

I was thinking about my sweet Tobin, and how much money I've spent on him over the years without ever batting an eye.  When it comes to caring for him, money is never a question or issue.  I'll do whatever it takes.  And then I realized that I need to extend that same grace towards myself.  I am worth excellent treatment by a skilled physician.  I am worth the cost.  Why do I place his needs so high, while so easily discounting my own?  Why do I apologetically ask my manger for time off to treat my cancer?

Reaching out to people for financial assistance has been hard and good.  Hard, because I feel guilty asking people to help me fight cancer.  Good, because it forces me to not fight cancer alone, which I would be prone to do.  I would isolate myself and place the burden on my own shoulders and not want to inconvenience anyone.

But I realize that instead of being inconvenienced, people experience great joy in providing support.  When it comes to those we love, we think about doing the best for them no matter the cost.  I think sometimes I approach God in that same way, feeling like I am an inconvenience and burden or not believing in the gravity of His love for me.  Having Tobin has allowed me to see that my love for him is not only mirrored by God's love for me, but that God's love is so exponentially beyond the love I'm capable of giving anyone or anything that it's truly beyond my comprehension.  And He is the one in whom my well-being and care is entrusted.

I was told to not let red tape or insurance hoops stand in the way of the best care.  I'm terrified to have my surgery done on Monday, not because they're cutting me open, but because of the bills I know will be arriving in the mail in a few weeks.  But, I'm entrusting myself to the hands of the Greatest Physician and Provider, and trusting that He knows and sees my needs and already has a plan.

Jesus, calm my nerves.

Trading Beauty for Ashes

I've never observed and experienced something so painful and scary turn into something so beautiful and awe-inspiring.

When I woke up this morning, I realized that I already had over $1,000 in cancer treatment donations from friends and family members, and I was moved to tears.  For most of my life, I've been an activist for various causes, and it's always been natural for me to champion a particular group's fight for justice.  When my sister and I were working to create an online place for loved ones to give towards my medical expenses, it felt like we were planning for someone else (typical INFJ that I am, I just can't tolerate the spotlight).  I was distracted from my diagnosis because I was focused on a goal and on spreading awareness.  It wasn't about me.

But then when I awoke to messages of compassion and concern, an outpouring of notes on Facebook and e-mails in my inbox, plus everyone's generous financial gifts, it hit me that all this is about me.  And I realize that it's actually about God, and my family, and a variety of people touched by my life in different ways, but it was the no-strings-attached rallying on my behalf that made me feel more loved than I probably ever have before.

I am reminded that He is with me and for me.  He surrounds me, front and back.  He places His hand upon me.  This unconditional love and rooting for my healing is the tiniest reflection of the depth and extravagance of the love He holds for us.  To contemplate that fact boggles my mind.  These gifts are from Him, this love is of Him.  And so in spite of this past week being one of the hardest of my life, my being forced to rely on the profound love of those around me makes me more aware of Him, and at the end of the day there is nothing more I could want.

Cancer's Lessons on Love

I think for many of us, the word cancer conjures up images of hairless scalps and hospital rooms and colored ribbons and walks for cures.  We think of kids with leukemia and women with breast cancer and smokers with lung cancer.  In terms of media and popular representations of cancer, there is a group of people that seem to totally be skipped over--those from 15 to 39.  Until I was diagnosed, I didn't realize that as a 28-year-old, I thought of cancer as some far-off thing that might happen to me much later in life.  I think I somehow subconsciously thought that if cancer didn't affect me as a child, I would be safe from it until I was elderly, or at least more advanced in age.

Even though I've only known about my cancer for three days, my perspectives regarding and perceptions of the C-word are changing.  I'm learning that it's not all chemotherapy and hospital stays and planning for the end.

What I've discovered after three days of knowing about my cancer (and I write this to sound like a generalized experience, but know that it is actually specific only to me):

1. A diagnosis makes you an insomniac.  You find yourself up at 3AM trolling the Blue Shield and American Association of Endocrine Surgeon websites, trying to find a skilled doctor that is part of your insurance network.  Or, you start Googling the scientific words they used in your biopsy report to figure out what the hell they're actually saying about your cancer cells.
2. You will find yourself in the bathroom a lot.  It will feel like you're getting an ulcer.  Food won't agree with your stomach.  You'll wake up and run immediately to the restroom.  You'll realize that at a time when you should be taking the best care of yourself ever, you end up making poor food choices because the bad foods comfort even if you can't digest them.
3. You will become an experienced ugly-crier, complete with snot over-production, mascara-stained cheeks, and whaling sounds.  The hardest moments will be when you find yourself alone and in a quiet place.  Those are the moments when you don't feel like you have to hold it together or be strong for anyone, and all you'll be able to hear amidst the silence is your conscious reminding you, "I have cancer."

But, in all seriousness, I think the reality of my condition hit about 30 hours after I learned about my diagnosis.  I was driving home from work, and I just started crying uncontrollably.  All day I was assisting customers with their needs, focusing on solving problems and finding what they were looking for, while being totally distracted from my own woes.  But it's once I got in my car and didn't have to smile anymore or be helpful or take care and be supportive of anyone else that I felt the weight of the world on my shoulders.  It's hard to muster up strength to meet people's needs when really you just want to collapse for a while and let someone carry you.  In some ways, going to work has been beneficial because it does serve as a distraction, but I think it's going to take time for me to learn that it's okay to go home and be weak.  He is sufficient to be my strength once I'm not distracted, and He's given me my family to share in His duty of carrying me through this without my having to feel guilty.

And I think that's the hardest part.  Realizing that despite the fact that you're stronger than you ever realized, you're simultaneously weaker than you every dreamed possible.  I guess that's the beauty of His power being made perfect in weakness.  He provides you with strength and hope and courage and tenacity, while also bringing you to terms with your need to seek help and accept compassion and rely on others without being able to offer anything but gratitude in return.  You will likely see an outpouring of love, and all you can do is accept it and realize you deserve it because you're invaluable and that people don't expect you to feel indebted to them in any way.  I guess I'm discovering that cancer teaches you about love.

Getting the Treatment You Deserve

I stumbled upon an article last night, and one part in particular made me start crying.  I've had insomnia since Tuesday night, the day before my official diagnosis, and most of my major stress during the past few days has been due to thinking about missing work, figuring out finances, finding surgeons in my insurance network that I actually trust, and somehow trying to coordinate a lot of first-time consults to make a decision about who will do my surgery.  Reading this reassured me:

"Your doctors and nurses will become your source of comfort. You will feel safe with them. If you do not feel safe with them you need to change your care provider immediately. There is no time to waste. This shouldn't be a game played on anyone's terms but yours. When you find the right caretakers you will know immediately. Do not let insurance, money or red tape prevent you from getting the treatment you deserve. This is your only shot. There is always a way. Find those hands that you trust your life in and willingly give it to them. They will quickly bring you a sense of calm. They will spend time answering your questions. There will be no stupid questions to them. They won't do anything besides make you feel like you are the most important life that exists. They will never make you feel like they don't have things in control. They will be honest and accessible at all times. They might even become your friends. You might celebrate with them over drinks months or years after they have cured you. They deserve your gratitude, respect and appreciation daily. If you get upset at them during treatment know that they'll forgive you. They get that you're going through something they can't imagine--but they understand better than anyone. They see it every day and they choose to be there because they want to make the worst experience of your life more tolerable."

-Jeff Tomczek, "The Things I Wish I Were Told When I Was Diagnosed With Cancer"

The Day I Was Diagnosed with Cancer

For posterity's sake, since I'm sure one day I'll want to remember all the details...

It's been nearly 12 hours since my doctor gave me the news, and I think it's just now starting to sink in.  I have thyroid cancer.  I thought I was prepared for this diagnosis and that I expected this diagnosis--but somehow it still left me in a haze for most of the day.

At the beginning of May, I had my annual thyroid ultrasound and learned that my once-tiny nodule had doubled in size over the course of a year.  Because of this, the radiologist who analyzed images from my exam recommended a biopsy to determine the tumor's cytology.  I then had an ultrasound-guided fine needle aspiration biopsy performed on my thyroid last Friday.  Once the doctors tell you that they're seeing something suspicious, you start to brace yourself for the worst.  I had been mentally telling myself that I might have cancer--but still the whole idea of cancer didn't really sink in because I didn't know if I actually had it.  The assignment of that word seems to instantly make things sound a lot more serious.

I anxiously awaited news of the biopsy results from my doctor.  When I got off of work last night, I saw that I had a missed call and voicemail from my endocrinologist.  She didn't leave any specific information in the message, but I knew from her choice of words that it was likely not good.  She didn't indicate that there was no cause for worry, and made it seem very important that I speak with her as soon as I could.  I started to get a little emotional while driving home, and then once I was home and told my mom about the message, I broke down.  Here I had been talking for weeks about the possibility of having cancer, and then the reality hit that I might actually have it after all.  I just kept saying to my mom, "I have a feeling it's going to be bad."

I barely slept last night.  The hours I did sleep were restless, and then I work up nearly 3 hours earlier than I needed to.  I was making myself sick with worry, to the point that I went to the bathroom about 12 times in the span of just a couple hours.  I had to make a smoothie for breakfast because liquids were just about all I could stomach, and I knew I needed some nutrients.  Since my doctor didn't try calling me again last night or first thing in the morning like she had suggested she might, before work I ended up driving over to the imaging center where I had the biopsy done so that I could get a copy of the report.  Unfortunately, the pathology hadn't been faxed to them yet, so I left empty-handed.  Then I tried calling my primary care physician's office to see if they might have a copy of the report, but once again I was unsuccessful.  So, despite my best efforts at quelling the major anxiety I was experiencing, I was forced to continue to wait.

I got to work and couldn't really think about anything except for the fact that my doctor needed to talk to me and that she had the results and I didn't.  It's terrible knowing that the truth is out there, but is being kept from you.  I checked my phone a few times while at work, and saw that I had a missed call from my doctor's medical assistant, asking that I leave a message at their office with some good times that the doctor could call me.  I was so anxious to talk to my endocrinologist by this point that I left my work phone number and told her to call me there.  This situation seemed to grant an exception to a standard no-work-phones-for-personal-use policy.

Less than an hour after I called my doctor's office, the phone rang, my co-worker picked it up and then let me know the call was for me.  I excused myself to my boss's office and took the call there.  I don't remember everything my doctor said in those first few moments we spoke, but I don't think I'll ever forget these words: "They did find some cancer cells."  I was actually relatively calm and collect when she shared the news with me.  She told me about the type of cancer (papillary) and the prognosis (good).  She told me she would send me the names of some excellent surgeons and promised to be with me every step of the way.  She even offered to speak with my mom and explain it all to her.

After the phone call, I walked into the bathroom for a few seconds where I cried, but then quickly composed myself and got back out to the floor.  We've all heard the expression "I felt like I was dreaming," but I think today marks the first time I truly experienced what those words mean.  I was conscious and in my body, but it just sort of felt like everything was going on around me and I was totally detached from it.  Cancer.  Cancer.  Cancer.  At first, saying, "I have cancer," made me cry.  Now it's starting to sound more normal.  My new normal.

I realized that I should tell my manager what was going on, so I pulled her aside into the office and said aloud for the first time, "I have cancer."  She was truly wonderful and compassionate and actually managed to make me crack up amidst all of it, which I think is a gift of hers.  She excused me to make some phone calls and told me to not worry about getting hours covered.  I then called my mom, and for the second time I spoke the words, "I have cancer," and again the tears came.

Today was certainly not my most focused, but somehow I managed to get through a full workday.  While at lunch, I subtly broke the news to Facebook friends. My mom brought me flowers at work.  I contemplated the fact that not a single customer knew that the sales associate helping them was just diagnosed with cancer.

I got off work and returned home in that same foggy mental state.  I talked to my parents for awhile, and I cried fewer tears and had an easier time talking about my cancer.  I have cancer.

And life still goes on.  I ate my regular dinner and did my regular gym routine and the whole world kept on being normal.  Except I can't help but feel like everything's changed now--like my whole life is going to now be marked on a timeline of "before cancer" versus "after cancer."  I think about the fact that soon I will be a member of the group "cancer survivors."  I also think about the post I wrote several weeks ago and said that at least my thyroid disease isn't cancer--but now it is cancer.  One phone call changed me forever.

Before I heard the official news, somewhere amidst trips to the bathroom and the imaging center, I kept thinking about Psalm 139:5.  He goes with me and before me.  His hand is upon me.  Knowing that He's prepared the way and is not surprised by this and that nothing's changed for Him comforts me, because right now amidst all the changes I can be sure that He will be steadfast and unchanging.  I have peace and hope because I know that He is my Great Physician and oversees my life and health.

Once the diagnosis came and news had time to settle, the verse that came to mind was Psalm 23:4.  Even when I walk through darkness, He's with me.  There is nothing to fear.

I know it might take a few days to truly process the news, but overall I have actually been impressed by my own resiliency (and I say that with sincere humility).  Somehow the word "cancer" makes me feel like I should be freaking out, but, despite my shock, I'm actually not all that surprised.  I think somewhere deep down I knew this was coming.  He goes before me and guides me.  He leads me to green pastures and still waters.  He restores my soul and fills my cup to overflowing.

What If I'm the Five Percent?

It's funny how passively we can talk about cancer when it poses no obvious threat to us or the people we love.  We use it as a sort of slang word--a word used in casual conversation to epitomize profound suffering.

For the past five years, I've had to get ultrasounds of my thyroid.  Initially, the doctor that diagnosed me with Hashimoto's just wanted a visual baseline of what was going on with my gland (nodules are common in those with autoimmune thyroid conditions).  With every test, there have been small changes, but generally no cause for concern.  My thyroid was inflamed, but it slowly got smaller, and my nodules weren't changing in size (actually, I think one disappeared).

When I went in to pick up my report from this year's ultrasound, I was surprised to see that the radiologist recommended a biopsy.  Not only this, but the nodule had doubled in size since my last exam.  You can imagine my alarm in learning this, when last year the basis for my and the doctors' believing the nodule was benign was the fact that it wasn't growing.

In terms of statistics, only five percent of thyroid nodules are malignant.  However, that rate dramatically increases when various factors are considered, like the patient's age, whether the nodule is solitary, and the nodule's features.  Unfortunately, despite the fact that most nodules are benign, mine meets many of the criteria that make it potentially cancerous, and none of the criteria that indicate it's probably benign.

It's a strange feeling not knowing whether you're part of the five percent.  Of course, immediately there is a lot of fear and sadness.  You troll the internet in hopes of being able to self-diagnose the nodule as malignant or benign (this is impossible without a biopsy).  You ruminate about the fact that you may or may not have cancer.  You spend a lot of time going back and forth in your mind, playing out the scenarios either way.  You realize that you will be okay either way.  Somehow, I think an actual diagnosis is probably a lot less scary than the not knowing.  When you have a diagnosis, you know which mountain you face.  When you don't know, you don't know.

Aside from being emotional (but that's nothing new), the news doesn't exactly surprise me.  I've been so inundated in healthcare and medical treatments during the past few years that I've almost come to anticipate issues like this one.  Yes, I am worried, but less about what will be done if I do have cancer than I am about having doctors and treatment protocols I trust.  A potential cancer diagnosis is terrifying to someone who is skeptical regarding modern medicine and suspicious about most doctors.

Today, I saw a new doctor that told me God made my cells and designed them to know what to do.  She said that I need to start thanking Him for my body and realize that He gave me a healthy body; it's the environment and our food and toxins that have tainted my healthy body.  Her words made me cry, because I so often think of myself as being sickly and diseased that I forget that I didn't start out this way.  It's comforting to know that God didn't give me a lemon from the get-go.  I was given a healthy body that bears the effects of an unhealthy world.

I need to start thinking of myself as healthy with or without a thyroid or some lymph nodes--whether or not I'm part of the five percent.  "For while we live, we are always being given up to death for Jesus’ sake, so that the life of Jesus may be made visible in our mortal flesh" (2 Cor. 4:11, NRSV).  I am healthy because His spirit is within me.

Birthday Avoidance

I didn't remember that it was my birthday until a PCOS support group that I'm a member of e-mailed me at midnight.  Oh, that's right.  It's my birthday.

It seems totally strange to have forgotten one's own birthday.  In fact, when my co-workers, or family members, or even the ATM machine wished me a happy birthday during the past few days, I was almost startled by the words.  Oh, that's right.

I think I stopped celebrating birthdays after my 23rd.  It was during the year that I would turn 24 that I was diagnosed with Hashimoto's and PCOS.  I still remember the day my doctor gave me the news.  I decided to go shoe-shopping at Nordstrom Rack after my appointment, and I meandered through the aisles in a haze.  All I could think about was how my life would change and all that I would give up now that I was "diseased."

Last night, I had a vivid dream in which a doctor was showing me lab results that indicated high LH and low FSH levels in my blood (two reproductive hormones).  When I woke up this morning, I immediately went to Google and asked what those results would indicate.  It's PCOS.  I'm not sure if my subconscious was already aware of that information and was simply processing it in my sleep, or if my body is smart enough to know that its hormones are out of balance, and it's telling me exactly what's wrong while I'm dreaming.  Interestingly, in past labs my LH and FSH scores have always been normal.

So, when I woke up this morning I was only semi-aware of my own birthday, dwelling on my whacked-out hormones, thinking about the thyroid ultrasound I was about to have, and then I came downstairs and saw a birthday present from my parents atop the kitchen table.  I burst into tears.  Presents, with their wrapping paper and bows and cards with well-wishes, symbolize happiness and celebration, and I realized that there was little I was feeling happy or celebratory about.  Sometimes it just feels like this life is happening to me, and I've given up even trying to be happy or celebrate in the midst of it.  My mom tells me I'm depressed.  I know I am.

I kept forgetting my birthday because I didn't want it to happen.  I don't want to acknowledge turning another year older.  I don't want a reminder of my illnesses, and age, and current set of circumstances.  When I begin to ruminate about all those things, it just makes me hate my life, and instead of feeling grateful for gifts, I cry over them.

Today I've been receiving "happy birthday" messages on Facebook and my cell phone.  I started to contemplate the fact that people are telling me to have a happy birthday, but that they should more aptly say "depressing birthday" or "annoying birthday."  That's how I feel about my birthday this year.  Go away, birthday.

After I wiped away my tears and composed myself, I headed over to the local imaging center to have my annual thyroid ultrasound.  While I sat in the waiting room, I thought about how no one there knew it was my birthday and I wondered if they thought I looked sad (realistically, none of them were probably paying much attention to me).  I also thought about the fact that I am at least 20 (and probably closer to 50) years younger than the people I usually see in those waiting rooms.  It actually made me feel momentarily young.  But still diseased.

And then I was called in for the exam.  I think this was the fifth time I've had my thyroid and its nodules inspected.  Unlike the other inspections, today the ultrasound hurt.  I know that my thyroid's been inflamed, both because my doctor told me it is and because it's been hard for me to swallow and I just feel that it's enlarged.  Having the roller on the exam wand roll around my throat, pushing into the inflammation, I remembered why I woke up feeling so blue today and why I haven't been doing well lately.  Hashimoto is on the loose in my body.

When the exam was finished, I walked out to the parking lot, opened my car door, sat down on the driver's side seat, and pulled down the mirror on the visor.  I tilted my head back so that my neck arched, and I scrutinized the area where my thyroid lies hidden.  Yes, definitely swollen.  In fact, the one side that hurt the most during the exam was actually visibly larger than the other side.  Oh, that's right.  Hashimoto's.

Somehow seeing my enlarged thyroid actually began to put things into perspective.  I am sick.  I'm allowed to be sick.  I'm not crazy.  I'm not doing something to myself.  I have a disease, and right now this is what my body is choosing to do.

I realized that instead of struggling against being sick right now, I think I need to just rest in the experience until a doctor helps me get things right.  Yes, my gland is inflamed.  Yes, I need to lose weight.  Yes, I'm exhausted.  Yes, I ache.  Yes, I have an autoimmune disease.  Oh, that's right.

I didn't choose this for myself, but this is my life.  And as much as I can ignore the fact that I have a birthday this year, I am turning another year older.  I am seeing a new doctor in a few weeks.  I'm going to talk to her about possibly switching to a different natural thyroid hormone.  I know this isn't how a successfully-treated person should be feeling.  And that is the one small hope I cling to--the belief that this is just a momentary lull in my treatment, and that things are bound to get better.  That next year they'll be better.

And so I celebrate, not for what is, but for what I am confident will be.  I celebrate the hope that next year I will remember my birthday.

But You're So Young

If I had a quarter for every time someone exclaimed those words to me, I'd be a rich woman: "But you're so young!"

People are frequently astonished by the number of doctors appointments I've had, tens of thousands of dollars I've spent, and variety of specialists I've seen during the past five years.

Endocrinologists, gastroenterologists, naturopaths, orthopedic surgeons, neurologists, otolaryngologists, gynecologists.

Today I had a marathon of doctors appointments, from 8AM until 5PM.  I was told two important things: I'm special and I'm so young.  I suppose the two go hand-in-hand.  My body is so young that my chronic illnesses make it "special," and I am special so I was bequeathed the duty of bearing these chronic illnesses.

Hashimoto's thyroiditis.  Faulty thyroid.

PCOS.  Faulty ovaries.

Insulin resistance.  Faulty cells.

Meralgia paraesthetica.  Faulty nerves.

Chondromalacia patella.  Faulty bones.

Small intestinal bacterial overgrowth (yet to be diagnosed). Faulty digestive tract (I'll spare the details).

Chronic otitis media. Faulty ear canals (and faulty earwax).

And, for those reasons, today the neurologist's physician assistant proclaimed, "But you're so young!"

I returned home from my appointments feeling a little blue.  It's difficult not to be overwhelmed and sinking in a mire of self-pity when you're thrown orthotics and leg braces and physical therapy prescriptions and nerve tests and ear-canal suctioning and advisement to lose weight; when you're told your "special" ears (the doctor's words, not mine) require regular cleaning treatments and that you'll likely require knee replacement surgery in the future and that there's a 30% chance you'll never regain feeling in your thigh due to nerve damage.  After all that, you begin to share in the PA's sentiments--but I'm so young!

Every part of my body is affected, from top to bottom.  There is some faulty part of me in every section of my anatomy.  When you think of all those faulty bits, the distinction between faulty components and faulty whole becomes blurred.  I feel faulty.  I am faulty.

The one ray of hope that shone through the dark cloud of my brooding was a recollection of Paul the Apostle's words: "So we do not lose heart.  Though our outer self is wasting away, our inner self is being renewed day by day.  For this light momentary affliction is preparing for us an eternal weight of glory beyond all comparison,  as we look not to the things that are seen but to the things that are unseen.  For the things that are seen are transient, but the things that are unseen are eternal" (2 Cor. 4:16-18).

Reflecting upon those words now, they bring tears to my eyes.  Yes; my outer self is wasting away.  Yes; I face affliction.  But, as my body undergoes treatments and receives diagnoses and becomes more and more faulty, my spirit is being made more whole.  I am being conformed more and more to His likeness.  My suffering is actually light and momentary.

"The eternal weight of glory beyond all comparison."  Those are words I want to cling to on days like today.  The eternal weight of glory.  The burden of my illnesses feels much lighter knowing how much weightier the coming glory will be.

My body is transient and temporal.  His purposes are eternal.

The Slow Life of Recovery

A fellow autoimmune-disease-sufferer recently described the healing process as "slowing down life to a crawl and setting boundaries."  For a lifelong perfectionist and overachiever, the "slowing down life" part of autoimmunity can be wearing on the self-esteem.  Mind you, I have no trouble at all with the actual slowing down of life; I can lounge and binge-watch Netflix like any good couch potato.  It's the thinking related to the slowed-down life that sometimes gets me down.

I am fairly content right now with my circumstances, not because I feel like I am fulfilling my dreams and passions, but because I feel like I can breathe and wake up in the morning without wanting to die.  I know that sounds melodramatic.  But, I know that my autoimmunity has gotten the better of me when I struggle to get out of bed, when tears constantly seem to be seeping out of my eyes, when I stop being able to make decisions and feel like my sanity has left me.  My body becomes inflamed, my thyroid swells and affects my swallowing, my joints hurt, I crave sugar and fatty foods.  I can't sleep at night.

I recently made the difficult decision to leave a full-time job after only two months of employment.  I had been pursuing special education for the past few years, and I applied to jobs like the one I took in an effort to maintain a cohesive resume.  However, it only took about a month for me to realize that the job was killing me--really--and that I needed to seek other employment if I didn't want to end up hospitalized.

A retail position in my hometown providentially opened up right at the time I finally had the courage to give notice at my old job.  I was offered a new job that has nothing at all to do with my bachelor's or master's degrees and really doesn't formally require any specified education, but it doesn't add stress to my life.  In terms of the amount of mental exertion it requires and stress it causes as compared to my previous role, the position would be classified as slow--a slow job for a slow life.

It's actually been fascinating to see how my body has responded to stressful situations in the past few years.  Normally I shut down completely and have the urge to flee.  I am thankful that my body takes care of itself even when my conscious mind tries to push me beyond reasonable (for me) limits.  I dropped out of graduate programs, moved across the country and back, changed majors, changed jobs.  It may seem reckless and confused to an onlooker, but really the back-and-forth nature of some of my decisions and life activities has been nothing more than a battle between my body protecting itself from breaking down and my mind telling me that I need to live up to my own unrealistic expectations.

It is humbling working in a retail position with a master's degree in hand.  I am not making very much money (not even enough to meet my basic monthly expenses).  I live with my parents.  Sometimes I feel as though my intellect is atrophying.  But I'm breathing.  And I'm alive.  And I'm not just surviving.  I am still inflamed and my thyroid is still swollen and my joints still hurt and I'm still 30 pounds heavier than I normally am.  But I have hope.  It's going to be okay.  I'm going to be okay.

The same person that described healing as a slowing down of life also said that it is how we recover from autoimmune burnout that is most critical.  I can think about how I'm not using my graduate degree; or, I can think about how amazing it is that I was able to earn a master's degree despite the mass of obstacles I've endured in the past couple of years.  I can think about how I don't have a career and haven't met my earning potential; or, I can think about the ways in which my current job suits me and allows me the freedom and flexibility to sleep in and see doctors during the week because of my nontraditional schedule.

My fellow autoimmune-disease-suffer said that as our lives slow, we not only heal from years of exhausting our adrenals, but we discover our purpose.  And, according to him, it is after that simultaneous healing and finding purpose that we can thrive.  When my life is slower, my mind gets quieter.  And when my mind is quieter, I stop pushing myself.  And I listen to my heart.  And I let my body lead.  When my life is slow, the first threat of stress immediately gets pushed away.  That's how I know I'm not ready.  And somehow it's easier to listen to my heart when I know I'm in a season of waiting.  The perfectionist, over-achieving tendencies get shelved because I know there is nowhere to push myself.  I'm waiting.  I'm not ready.

And I think that when I am ready, it won't be my conscious mind pushing me anymore, but my heart guiding me into the happiest, healthiest places where my body knows it will thrive.